This was a special week for us. Team Jensen have been fantastic supporters of Wepre parkrun, and we have been able to thank them with this special event.
The turn-out was brilliant, we had 184 finishers, one of the highest totals ever for Wepre parkrun. This was partly because it was the first dry Saturday morning for many weeks, but mainly because so many parkrunners turned out dressed in orange to support Team Jensen and “Go Orange for Muscular Dystrophy”.
Rob Mackey, Event Director for Wepre parkrun said “Wepre parkrun is always fun, but today was special. The whole atmosphere was buzzing! Apart from the 184 runners, joggers and walkers we had 25 volunteers marshaling on the course and working on the finish to record times and positions. I was tail-walker along with my daughter and our dogs. It was fantastic to see the support all round the course from the masses of spectators enjoying the event. But on a serious note, I hope that we have helped raise awareness of this dreadful muscle-wasting condition and help Team Jensen in their fundraising to help research into this condition”.
For more information
Jenson Edwards, who will be five years old in October 2017, lives in Buckley in North Wales and was diagnosed with Duchenne muscular dystrophy in February 2016.
Mum Hannah and Dad Craig first realised that something was not quite right with their son when they noticed that Jenson’s legs were not working like they should.
Jenson was finding it difficult to get up easily off the floor and was not able to run around like other children of his age.”
Blood tests were carried out at Wrexham hospital towards the end of 2015 and a diagnosis was confirmed a few months later. His parents describe what happened:
We were absolutely heartbroken. We felt numb and soul destroyed for a long time and were very scared of what the future might hold. Duchenne muscular dystrophy is a rare muscle wasting condition mainly affecting boys. It means that Jenson cannot produce the protein dystrophin and will lose the ability to use the muscles in his body.”
Like many other parents coping with the devastating news, they turned to the internet for further information and, along with advice from the hospital, were put in touch with Muscular Dystrophy UK.
Since coming to terms with Jenson’s diagnosis of Duchenne muscular dystrophy the family, including Jenson’s sisters, fifteen-year-old Yasmin and twelve-year-old Jessica, have all tried to raise awareness of their son’s condition in their local community and have turned to fundraising as a way to get others involved in supporting them.
Since starting their fundraising Hannah and Craig have set up their own website and have taken part in a variety of fundraising events including the Great Manchester Run, held an auction night in October 2016 and run in the Manchester Half Marathon. Future plans include a team of sixteen participants in the Make Today Count skydives on 5 March 2017 followed by an even larger team of runners taking part in the Chester Half Marathon in May 2017. In addition Jenson’s dad Craig is working on an idea to try and arrange a team to get sponsored to pull an Airbus transporter aircraft along the runway of a local airfield.
Jenson is a lovely bright and happy boy who loves swimming and painting but we know how serious his condition is and how it is going to affect him more and more as he gets older. We have been amazed at how many people in the area want to do something to help Jenson and help us to raise funds for research into his condition and we can’t thank them enough for what they are all doing.”
How you can help